Open AccessCo-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach
Author(s) -
Anna Sendra,
Sylvie Grosjean,
Luc Bonneville
Publication year - 2022
Publication title -
qualitative health communication
Language(s) - English
Resource type - Journals
ISSN - 2597-1417
DOI - 10.7146/qhc.v1i1.124110
Subject(s) - experiential learning , narrative , experiential knowledge , psychology , embodied cognition , qualitative research , narrative inquiry , knowledge management , perspective (graphical) , medical education , sociology , medicine , pedagogy , computer science , epistemology , linguistics , philosophy , social science , artificial intelligence
Background: The use of collaborative approaches in the design of digital health technologies could help researchers to better understand the patient perspective. Starting from a 2019 Canadian case study focused on co-design and Parkinson’s disease, this paper discusses the potential of using narrative interviews to capture the patient experience. Aim: The objectives of this study are to examine the process of co-construction of ‘experiential knowledge’ through the interaction during a narrative interview and stress the significance of this method in relation to a co-design approach. Methods: A qualitative analysis of transcripts from 19 narrative interviews conducted in 2019 with people living with PD and their caregivers was performed. Results: Materialized in embedded, embodied, and emergent knowledge, findings reveal the potential of narrative interviews to provide insight to how experiential knowledge of people living with PD is constituted. Discussion: In addition to generate a learning environment, the analysis indicates that narrative interviews help to make visible experiential knowledge through the interaction processes between patients, caregivers, and researchers. Conclusion: This suggests that narrative interviews permit a more patient-centered design of digital health technologies, as they collect the psychological, social, and medical factors that influence the experience of these individuals.