Open AccessStudying Genetic Risk in the Conduct of Everyday Life
Author(s) -
Lotte Huniche
Publication year - 2003
Publication title -
outlines/critical social studies
Language(s) - English
Resource type - Journals
eISSN - 1904-0210
pISSN - 1399-5510
DOI - 10.7146/ocps.v5i1.2161
Subject(s) - everyday life , ignorance , situated , sociology , disease , problem of universals , variety (cybernetics) , psychology , epistemology , social psychology , medicine , computer science , philosophy , artificial intelligence , pathology
This article is a revised version of a talk given in lieu of the Ph.D. dissertation: "Huntington´s Disease in Everyday Life. Knowledge, Ignorance and Genetic Risk". The dissertation evolves around the analysis of modern living with risk for a late onset genetic disorder. Here, three aspects of everyday lives faced with Huntington´s Disease (HD) are discussed. First, HD is one aspect of everyday living along with a variety of other aspects. The importance of risk is analysed as personal and changing in changing circumstances. Second, genetic knowledge and technology are not solid universals, but situated and changing, and of varying importance in lives at risk. Last, the ethical rationalities of everyday living, research and clinical practice concerned with a hereditary condition are discussed as complex and contradictory in and across structures of social practice.