Open AccessBOLNIK S HEMOFILIJO V SLOVENIJI: OD LETA 1967 DO DANES
Author(s) -
Majda Benedik Dolničar
Publication year - 2015
Publication title -
zdravniški vestnik
Language(s) - English
Resource type - Journals
eISSN - 1581-0224
pISSN - 1318-0347
DOI - 10.6016/zdravvestn.1089
Subject(s) - medicine , harm , intensive care medicine , enforcement , pediatrics , psychology , law , political science , social psychology
The comprehensive management of patients with rare diseases, such as hemophilia and other bleeding disorders, must be organized with extreme care and systematically. Treatment of bleedings, their common consequences and complications as well as the enforcement of basic prevention maeasures can be very costly. However, the subsequent consequences of improper and inadequately organized treatment are much higher. Besides its negative medical impact on the patient himself, the harm for the patient's family and the society as a whole can be substantial and severe. Today, with proper treatment the patient with hemophilia or other bleeding disorders can lead a completely normal and creative way of life.