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Lessons learned in genetic research with Indigenous Australian participants
Author(s) -
Tong Steven YC,
D'Antoine Heather,
McKin Melita,
Turner Kyle,
Hudson Maui,
Brown Ngiare,
Carapetis Jonathan R,
Bessarab Dawn C
Publication year - 2020
Publication title -
medical journal of australia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.904
H-Index - 131
eISSN - 1326-5377
pISSN - 0025-729X
DOI - 10.5694/mja2.50499
Subject(s) - indigenous , psychology , geography , biology , ecology
The importance of including minority populations in research is increasingly recognised.1 Advances in clinical and research genomics have highlighted the need for and challenges of inclusion of Indigenous populations in genomic studies.2,3 Previous negative experiences in genomics research in Indigenous populations4,5 have placed substantial barriers, but the opportunity now exists to take a fresh approach through genuine partnership with, and leadership from, Indigenous communities and their representatives. In this article, we reflect on the lessons learned from a recent genomewide association study of rheumatic heart disease (RHD) with Aboriginal Australian participants.6