Premium
Working in partnership with support services in the era of the “new genetics”
Author(s) -
BarlowStewart Kristine K,
Gaff Clara L
Publication year - 2003
Publication title -
medical journal of australia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.904
H-Index - 131
eISSN - 1326-5377
pISSN - 0025-729X
DOI - 10.5694/j.1326-5377.2003.tb05333.x
Subject(s) - general partnership , medical genetics , psychosocial , coping (psychology) , human genetics , genetic counseling , genetic testing , medicine , psychology , medical education , psychiatry , genetics , political science , biology , law , gene
Patient care in the “new genetics” era encompasses not only the diagnosis of a genetic condition or risk, but also managing the psychosocial, familial and ethical sequelae. Partnerships between the medical professional and expert clinical genetics services, support groups, registries and genetics education services provide a framework for this management. More than 750 Australian support groups assist individuals and families with genetic conditions through contact with peers, information and education resources for patients and professionals, practical advice about coping and advocacy.