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Huntington's Disease: The Establishment of a National Register
Author(s) -
Chiu Edmond,
Teltscher Betty
Publication year - 1978
Publication title -
medical journal of australia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.904
H-Index - 131
eISSN - 1326-5377
pISSN - 0025-729X
DOI - 10.5694/j.1326-5377.1978.tb131634.x
Subject(s) - register (sociolinguistics) , huntington's disease , disease , medicine , linguistics , pathology , philosophy
The historical background of Huntington's disease in Australia is briefly described, together with the development of professional and self‐help groups. An existing Huntington's disease register in Victoria is described in detail. A case is made for the need for the establishment of an Australia‐wide register of Huntington's disease. Certain ethical issues and safeguards necessary to such a register are discussed.