Determinants of usage and nonadherence to noninvasive ventilation in children and adults with Duchenne muscular dystrophy | Zendy

M.S. Hurvitz | Zendy; Rakesh Bhattacharjee | Zendy; Daniel J. Lesser | Zendy; Andrew J. Skalsky | Zendy; Jeremy E. Orr | Zendy

Open Access

Determinants of usage and nonadherence to noninvasive ventilation in children and adults with Duchenne muscular dystrophy

Author(s) -

M.S. Hurvitz,

Rakesh Bhattacharjee,

Daniel J. Lesser,

Andrew J. Skalsky,

Jeremy E. Orr

Publication year - 2021

Publication title -

journal of clinical sleep medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.529

H-Index - 92

eISSN - 1550-9397

pISSN - 1550-9389

DOI - 10.5664/jcsm.9400

Subject(s) - medicine , duchenne muscular dystrophy , muscular dystrophy , noninvasive ventilation , physical therapy , pediatrics , physical medicine and rehabilitation , intensive care medicine , mechanical ventilation

Duchenne muscular dystrophy (DMD) is a neuromuscular disorder that leads to chronic respiratory insufficiency and failure. Use of home noninvasive ventilation (NIV) has been linked to improved outcomes including reduced mortality. Despite the importance of NIV, factors promoting optimal NIV usage and determinants of nonadherence have not been rigorously examined. Moreover, given that respiratory issues in DMD span between childhood and adulthood, examination across a broad age group is needed. The objectives of this study were to (1) evaluate NIV usage across a broad spectrum of patients with DMD, including both children and adults, and (2) identify biological and socioeconomic determinants of NIV usage and NIV nonadherence.

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