
Experiences of Mothers Who Care for Adults with Profound Intellectual Disabilities. Qualitative Study
Author(s) -
Diana Aksamit,
María del Mar Badía Martín
Publication year - 2022
Publication title -
international journal of special education
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.216
H-Index - 25
eISSN - 1917-7844
pISSN - 0827-3383
DOI - 10.52291/ijse.2021.36.13
Subject(s) - qualitative research , intellectual disability , psychology , meaning (existential) , narrative , developmental psychology , special education , pedagogy , sociology , psychiatry , social science , psychotherapist , linguistics , philosophy
The purpose of this qualitative study was to evaluate the motherhood experience when caring for adult children with profound intellectual disabilities. The study was conducted in Poland with a group of 34 mothers. Data was collected and the qualitative methodology was applied, using in-depth narrative interviews. The results of the research indicated that these experiences also include various critical events; experiences that became part of the motherhood to which the women attributed personal meaning. The study results suggest the need for state reform measures to support mothers of adults with profound intellectual disabilities and at the same time, for many families.