Open AccessParticipation of children with Congenital Zika Virus Syndrome: intersections between the bioecological model and human functionality
Author(s) -
Miriam Ribeiro Calheiros de Sá,
Márcia Denise Pletsch
Publication year - 2021
Publication title -
práxis educativa
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.213
H-Index - 4
eISSN - 1809-4309
pISSN - 1809-4031
DOI - 10.5212/praxeduc.v.16.17383.017
Subject(s) - zika virus , inclusion (mineral) , perspective (graphical) , human development (humanity) , qualitative research , child development , quality of life (healthcare) , activities of daily living , psychology , gerontology , developmental psychology , medicine , sociology , nursing , political science , social psychology , social science , psychiatry , virus , computer science , virology , artificial intelligence , law
This article presents results of the participation and functionality of children with multiple disabilities due to Congenital Zika Virus Syndrome in activities performed at home. The qualitative research was carried out in Baixada Fluminense, Rio de Janeiro, Brazil. To collect information, we used the instrument Participation and Environment - Children and Youth (PEMCY). The data were analyzed based on the references of the bioecological and systemic theory of human development by Uri Bronfenbrenner, in dialogue with the perspective of human functionality of the World Health Organization. The results howed that mothers are not only the main person responsible for the daily care of children at home, but also for developing different strategies to expand the participation and functionality of the child in daily activities, being, therefore, protagonists of the social and educational inclusion. They also indicated the need for intersectoral programs and actions to favor the development of these children and improve the quality of life and their well-being.