Open AccessEstablishment of the Brazilian Registry of Hematopoietic Stem Cell Transplantation, using the database the Center for International Blood and Marrow Transplant Research
Author(s) -
Cinthya Corrêa da Silva,
Heliz Regina A. Neves,
Anderson João Simione,
Bruna Letícia da Silva Santos Geraldo,
Marcelo C. Pasquini,
Adriana Seber,
Carmen Silvia Vieitas Vergueiro,
Leonardo Javier Arcuri,
Carmem Bonfim,
Fernando Barroso Duarte,
Mary E.D. Flowers,
Vergílio Antônio Rensi Colturato,
Nelson Hamerschlak
Publication year - 2021
Publication title -
journal of bone marrow transplantation and cellular therapy
Language(s) - English
Resource type - Journals
ISSN - 2675-374X
DOI - 10.46765/2675-374x.2021v2n2p100
Subject(s) - bone transplantation , hematopoietic stem cell transplantation , transplantation , hematopoietic cell , medicine , stem cell , haematopoiesis , biology , surgery , genetics
The number of hematopoietic stem cell transplantation (HSCT) in Brazil is growing rapidly. To better understand the outcomes of HSCT in Brazil, strategies have been developed with the Center for International Blood and Marrow Transplant Research (CIBMTR), using its standardized registry structure and data sharing application. The methods adopted to establish the registry were through efforts to increase the Brazilian centers that report to CIBMTR included training courses for HSCT data managers, the officialization of a multicenter HSCT study using the CIBMTR structure and the partnership between Brazilian Society of Bone Marrow Transplantation (SBTMO) and the CIBMTR. Here we describe the history for establishing the HSCT Brazilian database using the CIBMTR back to center data and present the aggregated results since 2016. We found a significant increase in the numbers of active centers reporting to CIBMTR from 11 in 2016 to 21 in 2020 corresponding to higher numbers of transplants reported to the CIBMTR from 574 to 921 in that period. The model used to generate this national database was effective as it leverages existing infrastructure to assess the activity and outcomes of HSCT in Brazil.