Open AccessExperiences of Iranian Women with Prenatal Diagnosis of Fetal Abnormalities: A Qualitative Study
Author(s) -
Fahimeh Ranjbar,
Fatemeh Oskouie,
Shahrzad Hashemi Dizaji,
Maryam Gharacheh
Publication year - 2021
Publication title -
the qualitative report
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.335
H-Index - 35
ISSN - 2160-3715
DOI - 10.46743/2160-3715/2021.4688
Subject(s) - qualitative research , referral , prenatal diagnosis , medicine , pregnancy , blame , autonomy , obstetrics , family medicine , psychology , fetus , psychiatry , social science , sociology , biology , political science , law , genetics
Women are more likely to be diagnosed with congenital anomalies due to advances in new technologies in medical science. Following prenatal diagnosis of fetal abnormalities, women may be forced to make decisions about whether to continue a pregnancy with fetal abnormalities. This can be a dilemma for the women. The aim of the study was to explore women’s experiences of prenatal diagnosis of fetal abnormalities. A qualitative study was conducted in a referral women’s hospital in Tehran, Iran in 2018. Participants were a purposeful sample of 15 women with prenatal diagnosis of fetal abnormalities. Data were collected by individual, in-depth interviews. The conventional content analysis approach was used to analyze the data. Two main themes “emotional suffering” and “decision-making challenge” were extracted from the participants’ experiences. Emotional suffering consisted of subthemes “commiseration,” “self-blame,” “sense of guilt,” and “projection.” Decision-making challenge included subthemes “lack of support,” “stereotypical beliefs,” and “uncertainty.” The women’s experiences of prenatal diagnosis of fetal abnormalities were associated with emotional suffering and challenges in decision-making to continue or terminate the pregnancy. Strategies need to be employed to improve women’s autonomy in decision-making. Healthcare professionals should be trained in communication skills to provide appropriate counseling to support women with diagnosis of fetal anomalies.