Open AccessImproving Access and Guideline Adherence in Pulmonary Care in Patients With Duchenne Muscular Dystrophy
Author(s) -
Jacob A Kaslow,
Jonathan H. Soslow,
W. Bryan Burnette,
F Raucci,
Tracy Hills,
Michaela Ibach,
Rita C Hebblethwaite,
Kara Arps,
Andrew G. Sokolow
Publication year - 2021
Publication title -
respiratory care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.751
H-Index - 89
eISSN - 1943-3654
pISSN - 0020-1324
DOI - 10.4187/respcare.09502
Subject(s) - medicine , duchenne muscular dystrophy , guideline , muscular dystrophy , intensive care medicine , physical therapy , pathology
Duchenne muscular dystrophy (DMD) is a devastating, progressive neuromuscular disease that results in cardiopulmonary failure and death. In 2018, the DMD Care Considerations guidelines were updated to improve the multidisciplinary approach to care and promote early respiratory management. We sought to evaluate the impact of a multidisciplinary clinic on access to pulmonary care and adherence to respiratory care guidelines.