
Lived experience of spouses of persons with motor neuron disease: Preliminary findings through interpretative phenomenological analysis
Author(s) -
Manjusha G Warrier,
Arun Sadasivan,
Kiran Polavarapu,
Veeramani Preethish Kumar,
Niranjan Prakash Mahajan,
Chevula Pradeep Chandra Reddy,
Seena Vengalil,
Saraswati Nashi,
Atchayaram Nalini,
Priya Treesa Thomas
Publication year - 2020
Publication title -
indian journal of palliative care/indian journal of palliative care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.395
H-Index - 26
eISSN - 1998-3735
pISSN - 0973-1075
DOI - 10.4103/ijpc.ijpc_123_19
Subject(s) - spouse , interpretative phenomenological analysis , motor neurone disease , medicine , referral , qualitative research , coping (psychology) , disease , exploratory research , clinical psychology , psychology , psychiatry , family medicine , amyotrophic lateral sclerosis , social science , pathology , sociology , anthropology
Motor neuron disease (MND) is a progressive neuromuscular disorder that can have significant and debilitating impact on the affected patient and families. Spouses are the primary carers for persons with MND in India, and the life of the person with MND and their spouse is never the same after the diagnosis.