Open AccessThe patients' experiences of burden of neurofibromatosis: A qualitative study
Author(s) -
Samira Foji,
Eesa Mohammadi,
Akram Sanagoo,
Leila Jouybari
Publication year - 2021
Publication title -
iranian journal of nursing and midwifery research.
Language(s) - English
Resource type - Journals
eISSN - 2228-5504
pISSN - 1735-9066
DOI - 10.4103/ijnmr.ijnmr_178_20
Subject(s) - quality of life (healthcare) , neurofibromatosis , qualitative research , medicine , nonprobability sampling , social isolation , disease , perception , disease burden , gerontology , psychology , psychiatry , pathology , nursing , environmental health , social science , population , neuroscience , sociology
Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diagnosis of NF1 includes café au lait spots, freckling, and Neurofibromas (NF). Skin symptoms have a major impact on patients' Quality of Life (QOL) but little is known about the burden of the disease on patients. The aim of this study was to explore the experiences of patients with NF.