Open AccessIntegrating Palliative Care for Patients on Clinical Trials: Opportunities for Oncology Nurses
Author(s) -
Betty Ferrell,
Tami Borneman,
Anna Williams,
Angela Scardina,
Pamela J. Fischer,
Thomas J. Smith
Publication year - 2020
Publication title -
asia-pacific journal of oncology nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.542
H-Index - 9
eISSN - 2349-6673
pISSN - 2347-5625
DOI - 10.4103/apjon.apjon_2_20
Subject(s) - medicine , clinical trial , palliative care , intervention (counseling) , quality of life (healthcare) , nursing , population , oncology , disease , intensive care medicine , family medicine , environmental health
The purpose of this article is to describe the lessons learned in the course of a 5-year research study on a palliative care intervention for persons on a Phase 1 clinical trial. Patients who are participating in Phase 1 trials and the families who care for them may be especially vulnerable and require special attention. The patients are generally experiencing the effects of advanced disease, and they also may soon experience unknown side effects, intense treatment regimens, and the emotional stress of an uncertain future as a result of clinical trial participation. Oncology nurses in all roles including clinical trials/research nurses, clinicians, educators, and advanced practice registered nurses play a critical role in addressing the quality-of-life concerns in this population. Palliative care can provide better symptom control and information on treatment options and facilitate a better understanding of patient/family goals. Attending to these factors can ultimately mean improved survival for the advanced cancer patient, and support for these patients can assist in advancing the field of oncology as these investigational therapies hold the promise for enhancing survival.