Open AccessETHICAL CONSIDERATION AND PSYCHOSOCIAL CARE FOR PEOPLE WITH HEMOPHILIA
Author(s) -
Lavinia Maria Hogea,
Bogdan Gheorghe Hogea,
Mihaela Aungurence,
Laura Alexandra Nussbaum
Publication year - 2017
Publication title -
romanian medical journal
Language(s) - English
Resource type - Journals
eISSN - 2069-606X
pISSN - 1220-5478
DOI - 10.37897/rmj.2017.1.4
Subject(s) - psychosocial , psychological intervention , face (sociological concept) , quality of life (healthcare) , medicine , psychosocial support , psychology , social care , psychotherapist , nursing , sociology , social science
Psychosocial support is an important part of comprehensive care for people with hemophilia. Beyond the medical condition, individuals with hemophilia commonly face a number of psychosocial challenges. Social workers, psychologists and counsellors play a key role in helping new patients and their families adapt and learn to cope with their new reality. It is possible to have hemophilia and still live a full life, even for those who face many social and economic challenges. Medical treatment alone does not automatically translate into better quality of life. Beyond medical treatment, the responsibilities of the hemophilia treatment centre include educating families about how to manage hemophilia and helping them find interventions for psychosocial issues.