Open AccessInflammatory bowel disease patient profiles are related to specific information needs: A nationwide survey
Author(s) -
Saleh Daher,
Tawfik Khoury,
Ariel Benson,
John R. Walker,
Oded Hammerman,
Ron Kedem,
Timftali,
Rami Eliakim,
Ofer BenBassat,
Çharles N. Bernstein,
Eran Israeli
Publication year - 2019
Publication title -
world journal of gastroenterology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.427
H-Index - 155
eISSN - 2219-2840
pISSN - 1007-9327
DOI - 10.3748/wjg.v25.i30.4246
Subject(s) - medicine , psychosocial , disease , inflammatory bowel disease , exploratory factor analysis , information needs , medline , family medicine , clinical psychology , psychiatry , psychometrics , political science , law , world wide web , computer science
Inflammatory bowel diseases (IBD) is a heterogenous, lifelong disease, with an unpredictable and potentially progressive course, that may impose negative psychosocial impact on patients. While informed patients with chronic illness have improved adherence and outcomes, previous research showed that the majority of IBD patients receive insufficient information regarding their disease. The large heterogeneity of IBD and the wide range of information topics makes a one-size fits all knowledge resource overwhelming and cumbersome. We hypothesized that different patient profiles may have different and specific information needs, the identification of which will allow building personalized computer-based information resources in the future.