Open AccessTransition of care of patients with eosinophilic gastrointestinal diseases: Challenges and opportunities
Author(s) -
Girish Hiremath,
Adrián Chapa-Rodríguez,
David A. Katzka,
Jonathan M. Spergel,
Benjamin D. Gold,
Albert J. Bredenoord,
Evan S. Dellon,
Jeannie S. Huang,
Sandeep K. Gupta
Publication year - 2022
Publication title -
translational science of rare diseases
Language(s) - English
Resource type - Journals
eISSN - 2214-6512
pISSN - 2214-6490
DOI - 10.3233/trd-220054
Subject(s) - eosinophilic , medicine , intensive care medicine , health care , medline , pediatrics , political science , pathology , law
Eosinophilic gastrointestinal disorders (EGID) are a group of allergen-mediated conditions which are characterized by eosinophilic inflammation affecting one or more parts of the gastrointestinal tract. A disproportionately higher number of EGID patients are diagnosed in the pediatric age group. Given the chronic course of EGIDs and lack of curative therapies at this time, majority of the pediatric EGID patients may require continued care well into their adulthood. However, to date, scant data are available regarding the health care transition (HCT), the transition of care (TC), and the effectiveness of transfer of care EGID patients from pediatric-oriented to adult-oriented providers. Herein, we review the lessons learnt from transfer of care of children with other chronic gastrointestinal and allergic conditions, analyze the current knowledge, potential barriers, the role of various stakeholders in successful transfer of care of EGID patients, propose a conceptual framework for HCT and TC of EGID patients, and identify outcome measures to ensure the quality of progression of care.