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Think globally, act locally: Quality improvement as a catalyst for COVID-19 related care during the transitional years
Author(s) -
Jonathan Castillo,
Ellen Fremion,
Melissa Morrison-Jacobus,
Rhonda Bolin,
Ana María González Pérez,
Eva Acosta,
Kelly Cahill Timmons,
Heidi Castillo
Publication year - 2021
Publication title -
journal of pediatric rehabilitation medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.277
H-Index - 23
eISSN - 1875-8894
pISSN - 1874-5393
DOI - 10.3233/prm-210119
Subject(s) - leverage (statistics) , spina bifida , pandemic , population , health care , covid-19 , globe , public health , vaccination , psychology , medicine , political science , nursing , environmental health , computer science , pediatrics , virology , disease , pathology , machine learning , neuroscience , infectious disease (medical specialty) , law
The COVID-19 pandemic has posed distinctive challenges to adolescents and young adults living with spina bifida, especially those from ethic minority populations. With this public health challenge in mind, developing a customized electronic health record to leverage registry data to promote and quantify COVID-19 vaccination uptake among this population is feasible. We provide a brief description of our activities in customizing an electronic health record to track vaccination uptake among adolescents and young adults with spina bifida (AYASB); and the lessons learned, in hopeful support of those scaling-up vaccination delivery across the globe for AYASB as they transition to adult-centered care. Thus, as providers think globally and act locally, COVID-19 immunization efforts can be implemented while providing culturally appropriate transition policies and services for individuals with neurodevelopmental disabilities.

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