Open AccessDisparities and ethical considerations for children with tracheostomies during the COVID-19 pandemic
Author(s) -
Lulia A. Kana,
Andrew G. Shuman,
Jennifer Helman,
Kelly A. Krawcke,
David J. Brown
Publication year - 2020
Publication title -
journal of pediatric rehabilitation medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.277
H-Index - 23
eISSN - 1875-8894
pISSN - 1874-5393
DOI - 10.3233/prm-200749
Subject(s) - pandemic , covid-19 , health care , population , medicine , face (sociological concept) , health equity , political science , nursing , sociology , environmental health , public health , virology , law , social science , disease , pathology , outbreak , infectious disease (medical specialty)
The COVID-19 pandemic is exacerbating longstanding challenges facing children with tracheostomies and their families. Myriad ethical concerns arising in the long-term care of children with tracheostomies during the COVID-19 pandemic revolve around inadequate access to care, healthcare resources, and rehabilitation services. Marginalized communities such as those from Black and Hispanic origins face disproportionate chronic illness because of racial and other underlying disparities. In this paper, we describe how these disparities also present challenges to children who are technology-dependent, such as those with tracheostomies and discuss the emerging ethical discourse regarding healthcare and resource access for this population during the pandemic.