Open AccessCommunicating 5-Year Risk of Alzheimer’s Disease Dementia: Development and Evaluation of Materials that Incorporate Multiple Genetic and Biomarker Research Results
Author(s) -
Jessica Mozersky,
Sarah M. Hartz,
Erin Linnenbringer,
Lillie Levin,
Marissa Streitz,
Kristin Stock,
Krista L. Moulder,
John C. Morris
Publication year - 2021
Publication title -
journal of alzheimer's disease
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.677
H-Index - 139
eISSN - 1875-8908
pISSN - 1387-2877
DOI - 10.3233/jad-200993
Subject(s) - dementia , psychosocial , clarity , disease , psychology , curiosity , gerontology , medicine , clinical psychology , psychiatry , pathology , neuroscience , biochemistry , chemistry
Cognitively normal (CN) older adults participating in Alzheimer's disease (AD) research increasingly ask for their research results-including genetic and neuroimaging findings-to understand their risk of developing AD dementia. AD research results are typically not returned for multiple reasons, including possible psychosocial harms of knowing one is at risk of a highly feared and untreatable disease.