Open AccessDevelopment of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
Author(s) -
Nelly Ziadé,
Thurayya Arayssi,
Bassel Elzorkany,
Amani Daher,
George A. Karam,
M. Abu Jbara,
Alla Aiko,
Elie Alam,
Samar Al Emadi,
Manal Al Mashaleh,
Humeira Badsha,
Lina El Kibbi,
Hussein Halabi,
Ghita Harifi,
Bhavna Khan,
Abdel Fattah Masri,
Jeanine Menassa,
Mira Merashli,
Georges Merheb,
Jamil Messaykeh,
Kamel Mroue,
Sahar Saad,
Nelly Salloum,
Imad Uthman,
Basel Masri
Publication year - 2021
Publication title -
mediterranean journal of rheumatology
Language(s) - English
Resource type - Journals
ISSN - 2529-198X
DOI - 10.31138/mjr.32.1.66
Subject(s) - empowerment , video production , medicine , medical education , patient education , arabic , population , social distance , psychology , nursing , disease , multimedia , covid-19 , computer science , environmental health , linguistics , philosophy , political science , infectious disease (medical specialty) , law
Objectives: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. Methods: Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. Results: Twenty-three rheumatologists from MEAC identified unmet needs in patients’ education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician’s visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. Conclusion: Despite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended.