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Revisiting Ethical Guidelines for Research with Terminal Wean and Brain‐Dead Participants
Author(s) -
PENTZ REBECCA D.,
FLAMM ANNE L.,
PASQUALINI RENATA,
LOGOTHETIS CHRISTOPHER J.,
ARAP WADIH
Publication year - 2003
Publication title -
hastings center report
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.515
H-Index - 63
eISSN - 1552-146X
pISSN - 0093-0334
DOI - 10.2307/3527910
Subject(s) - honor , terminal cancer , terminal (telecommunication) , psychology , life expectancy , inclusion (mineral) , expectancy theory , social psychology , sociology , palliative care , medicine , nursing , demography , engineering , computer science , internet privacy , population , telecommunications
Some research is too risky to be conducted on anyone whose life expectancy is more than a few hours. Yet sometimes, the research can still be carried out using subjects who are brain dead or are soon to undergo a terminal wean, and who have articulated values that inclusion in the study can honor. So argues a team of ethicists and researchers at M.D. Anderson Cancer Center, where such research was recently undertaken.