Open AccessA roadmap for precision medicine research recruitment: empirical assessment of the public's willingness to participate
Author(s) -
Kelsey Moriarty,
Susan M. Wolf,
Patricia McCarthy Veach,
Bonnie S. LeRoy,
Ian M. MacFarlane,
Heather Zierhut
Publication year - 2020
Publication title -
personalized medicine
Language(s) - English
Resource type - Journals
eISSN - 1744-828X
pISSN - 1741-0541
DOI - 10.2217/pme-2019-0125
Subject(s) - precision medicine , trustworthiness , personalized medicine , confidentiality , medicine , willingness to pay , medical education , family medicine , public health , psychology , social psychology , computer science , nursing , pathology , bioinformatics , computer security , economics , biology , microeconomics
Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of 'precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.