
Using the EQ-5D to measure caregiver health-related quality of life in rare pediatric disease: a study in aromatic L-amino acid decarboxylase deficiency
Author(s) -
Sarah Acaster,
K. Williams,
Hanna Skrobanski,
K. Buesch
Publication year - 2022
Publication title -
future neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.419
H-Index - 32
eISSN - 1748-6971
pISSN - 1479-6708
DOI - 10.2217/fnl-2022-0004
Subject(s) - concordance , eq 5d , quality of life (healthcare) , anxiety , medicine , disease , depression (economics) , aromatic l amino acid decarboxylase , clinical psychology , qualitative research , population , psychiatry , psychology , gerontology , health related quality of life , dopamine , nursing , social science , environmental health , sociology , economics , macroeconomics