Open AccessImproving Transitions of Care for Young Adults With Congenital Heart Disease: Mobile App Development Using Formative Research
Author(s) -
Keila N. Lopez,
Michael O’Connor,
Jason King,
James P. Alexander,
Melissa Challman,
Donna K. Lovick,
Nicole Goodly,
Amelia Smith,
Elliott Fawcett,
Courtney Mulligan,
Debbe Thompson,
Michael Fordis
Publication year - 2018
Publication title -
jmir formative research
Language(s) - English
Resource type - Journals
ISSN - 2561-326X
DOI - 10.2196/formative.9963
Subject(s) - formative assessment , adult care , socioeconomic status , transition (genetics) , medicine , psychology , gerontology , young adult , family medicine , pediatrics , population , pedagogy , biochemistry , chemistry , environmental health , gene
Congenital heart diseases (CHDs) are the most common type of birth defects. Improvements in CHD care have led to approximately 1.4 million survivors reaching adulthood. Successful transition and transfer from pediatric to adult care is crucial. Unfortunately, less than 30% of adolescents with CHD successfully transition to adult care; this number is lower for minority and lower socioeconomic status populations. Few CHD programs exist to facilitate successful transition.