Open AccessA Real-World Rheumatology Registry and Research Consortium: The German RHADAR Registry (Preprint)
Author(s) -
Stefan Kleinert,
Peter BartzBazzanella,
Cay von der Decken,
Johannes Knitza,
Torsten Witte,
Sándor P. Fekete,
Matthias Konitzny,
Alexander Zink,
Georg Gauler,
Patrick Wurth,
Peer Aries,
Kirsten Karberg,
Christoph Kuhn,
Florian Schuch,
Susanna Späthling-Mestekemper,
Wolfgang Vorbrüggen,
Matthias Englbrecht,
Martin Welcker
Publication year - 2021
Publication title -
jmir. journal of medical internet research/journal of medical internet research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.446
H-Index - 142
eISSN - 1439-4456
pISSN - 1438-8871
DOI - 10.2196/28164
Subject(s) - german , preprint , medicine , patient registry , medical emergency , computer science , world wide web , archaeology , history
Real-world data are crucial to continuously improve the management of patients with rheumatic and musculoskeletal diseases (RMDs). The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. The RHADAR modules allow automated anamnesis and adaptive coordination of appointments regarding individual urgency levels. Further modules focus on the collection and integration of electronic patient-reported outcomes in between consultations. The digital RHADAR modules ultimately allow a patient-centered adaptive approach to integrated medical care starting as early as possible in the disease course. Such a closed-loop system consisting of various modules along the whole patient pathway enables comprehensive and timely patient management in an unprecedented manner.