Open Access“Heroic Medicine” in the Management of a Child with Spinal Muscular Atrophy Type 1: A Fair Choice of Treatment?
Author(s) -
Fahisham Taib,
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Farah Fareesha A’idrus,
Damia Md Shokor,
Nurul Shuhada Shafie,
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AUTHOR_ID,
AUTHOR_ID
Publication year - 2021
Publication title -
education in medicine journal
Language(s) - English
Resource type - Journals
ISSN - 2180-1932
DOI - 10.21315/eimj2021.13.4.10
Subject(s) - spinal muscular atrophy , sma* , medicine , limiting , health care , physical medicine and rehabilitation , family medicine , physical therapy , intensive care medicine , pathology , mechanical engineering , mathematics , disease , combinatorics , engineering , economics , economic growth
Medicine is a rapidly changing field. The use of new drugs has given hope for patients’ survival and comfort for the family, especially in cases of children with life-limiting conditions. This has influenced the clinical decision on the options of care and treatment by either the caregivers or healthcare professionals. Medical management for these patients is threaded on many ethical discussions to determine the best choice for these patients. We illustrated a case of a baby with spinal muscular atrophy (SMA) type 1 who was started on a new medication, leading to a renewed hope for the family but a challenging task for the managing team to decide on the highest ceiling of care for the patient.