Open AccessThe End of Written Informed Consent for HIV Testing: Not With a Bang but a Whimper
Author(s) -
Ronald Bayer,
Morgan M. Philbin,
Robert H. Remien
Publication year - 2017
Publication title -
american journal of public health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.284
H-Index - 264
eISSN - 1541-0048
pISSN - 0090-0036
DOI - 10.2105/ajph.2017.303819
Subject(s) - informed consent , human immunodeficiency virus (hiv) , law , political science , public health , state (computer science) , family medicine , politics , medicine , gerontology , alternative medicine , nursing , pathology , algorithm , computer science
In 2014, only two states in the United States still mandated specific written informed consent for HIV testing and, after years of controversy, New York ended this requirement, leaving only Nebraska. New York's shift to opt-out testing meant that a singular feature of what had characterized the exceptionalism surrounding HIV testing was eliminated. We trace the history of debates on written informed consent nationally and in New York State. Over the years of dispute from when HIV testing was initiated in 1985 to 2014, the evidence about the benefits and burdens of written informed consent changed. Just as important was the transformation of the political configuration of HIV advocacy and funding, both nationwide and in New York State. What had for years been the subject of furious debate over what a rational and ethical screening policy required came to an end without the slightest public protest. (Am J Public Health. 2017;107:1259-1265. doi:10.2105/AJPH.2017.303819).