Open AccessOutcome measurement in paediatric palliative care: lessons from the past and future developments
Author(s) -
Julia Downing,
Eve Namisango,
Richard Harding
Publication year - 2018
Publication title -
annals of palliative medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.546
H-Index - 19
eISSN - 2224-5839
pISSN - 2224-5820
DOI - 10.21037/apm.2018.04.02
Subject(s) - medicine , palliative care , variety (cybernetics) , outcome (game theory) , scale (ratio) , quality of life (healthcare) , quality (philosophy) , patient reported outcome , narrative review , medical education , nursing , intensive care medicine , philosophy , physics , mathematics , mathematical economics , epistemology , quantum mechanics , artificial intelligence , computer science
The need for paediatric palliative care (PPC) globally is great yet there is limited evidence of the quality or outcomes of the care provided. The lack of an outcome measure for PPC has been consistently cited as one reason for the lack of robust evidence in the field. Thus recommendations have been made for the development of locally relevant, validated tools to measure outcomes for children.