Open AccessIntergenerational Caregivers of Parents With End-Stage Heart Failure
Author(s) -
Windy Alonso,
Lisa Kitko,
Judith E. Hupcey
Publication year - 2018
Publication title -
research and theory for nursing practice
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.172
H-Index - 41
eISSN - 1945-7286
pISSN - 1541-6577
DOI - 10.1891/1541-6577.32.4.413
Subject(s) - thematic analysis , psychology , family caregivers , longitudinal study , qualitative research , palliative care , end of life care , gerontology , developmental psychology , nursing , medicine , social science , pathology , sociology
Purpose: The purpose of this study was to longitudinally explore the experiences of young adult, adult, and older adult intergenerational caregivers caring for a parent with end-stage heart failure (HF). Design: This study was a secondary analysis of qualitative data collected during a longitudinal study that sought to determine the palliative care needs of individuals with end-stage HF and their family caregivers. Methods: Longitudinal interviews from 23 young adult, adult, and older adult children who were caring for a parent with end-stage HF were selected for thematic analysis. Researchers individually analyzed the interviews and then, as a group, came to a consensus about themes. Findings: Five major themes were identified: c aregiver resources, role management, caregiver-parent relationships, filial responsibility , and personal benefits and challenges Conclusions: These intergenerational caregivers struggled to balance their busy lives and caregiving roles. However, most felt supported by other family members or external resources. Longitudinal findings support a need for improved employer-based support for intergenerational caregivers and special attention to young carers in research and practice. Recognition of and advocacy for intergenerational caregivers providing care for a chronically ill parent is needed.