Open AccessUtilization of alternative and augmentative communication resources by patients with amyotrophic lateral sclerosis.
Author(s) -
Micaele Kedma Ribeiro de Moraes,
Vagner Rogério dos Santos,
Francis Meire Fávero,
Acary Souza Bullé Oliveira,
Renato Rosseto,
Kelly Cristina Borges Tacon,
Viviane Lemos Silva Fernandes,
Samara Lamounier Santana Parreira
Publication year - 2020
Publication title -
manual therapy, posturology and rehabilitation journal
Language(s) - English
Resource type - Journals
ISSN - 2236-5435
DOI - 10.17784/mtprehabjournal.2019.17.723
Subject(s) - amyotrophic lateral sclerosis , augmentative and alternative communication , socialization , exploratory research , psychology , resource (disambiguation) , augmentative , disease , medicine , developmental psychology , sociology , psychiatry , computer science , pathology , computer network , linguistics , philosophy , anthropology
Amyotrophic Lateral Sclerosis (ALS) is a multisystemic impairment disease, among them, the total loss of communicative abilities. Augmentative and Alternative Communication (CAA) seeks to provide effective communication through specific resources. Objective: To verify the influence of ALS on aspects of personal, social and environmental life in patients who use the CAA. Methods: This is a qualitative, exploratory, longitudinal research of a series of cases. The patients with ALS were invited to participate of an evaluation with a sociodemographic and semi-structured questionnaire. Each participant obtained a CAA resource offered by the present research and returned for a reevaluation. Results: The analysis based on the reports that emerged from the spontaneous comments and generated five categories (socialization, social attitudes, communication and rights, services, systems and policies, and family interaction). Conclusion: Even with the use of CAA, ELA generates negative impacts on socialization and social participation due to social and environmental factors.