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An Ethnography of an AIDS Hospice: Toward a Theory of Organizational Pastiche
Author(s) -
Kotarba Joseph A.,
Hurt Darlene
Publication year - 1995
Publication title -
symbolic interaction
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.874
H-Index - 47
eISSN - 1533-8665
pISSN - 0195-6086
DOI - 10.1525/si.1995.18.4.413
Subject(s) - ethnography , participant observation , everyday life , sociology , value (mathematics) , palliative care , nursing , health care , qualitative research , hospice care , psychology , public relations , medicine , social science , epistemology , political science , anthropology , philosophy , machine learning , computer science , law
This article describes everyday life at a hospice that provides terminal, residential care to persons with AIDS. Data were gathered over 12 months of participant observation and a series of formal interviews. The hospice is a nonprofit organization that receives most of its financial support from local community churches and agencies. The philosophy of the hospice is common to its genre—that is, care for dying patients should be holistic, personal, and palliative. The hospice staff largely adheres to this philosophy yet also organizes its everyday activities to meet the practical needs of everyone involved. Some of the more interesting staff practices include the use of touch for healing and communicating, and stress management techniques. The essence of everyday life in the hospice, though, is the relationship between the staff member and the resident. The study identifies three types of relationships— caring, pastoral , and intimate . The conclusion focuses on the value of integrating traditional interactionist ethnography and postmodernist social theory for conducting qualitative research on emerging health care phenomena like the AIDS hospice. The concept of organizational pastiche is offered to interpret the distinctive ways health care organizations specializing in HIV/AIDS care must adapt to the unprecedented cultural and biological features of the epidemic.