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The Social Dynamics of Genetic Testing: The Case of Fragile‐X
Author(s) -
Nelkin Dorothy
Publication year - 1996
Publication title -
medical anthropology quarterly
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.855
H-Index - 55
eISSN - 1548-1387
pISSN - 0745-5194
DOI - 10.1525/maq.1996.10.4.02a00090
Subject(s) - dynamics (music) , fragile x syndrome , fragile x , social dynamics , sociology , genetics , biology , social science , pedagogy , gene
This article considers a program to screen school children for Fragile‐X Syndrome as a way to explore several features of the growing practice of genetic testing in American society. These include the common practice of predictive testing in nonclinical settings; the economic, entrepreneurial, and policy interests that are driving the development of genetic screening programs; and the public support for genetic testing even when there are no effective therapeutic interventions. Drawing from research on popular images of genetics, I argue that cultural beliefs and expectations, widely conveyed through popular narratives, are encouraging the search for diagnostic information and enhancing the appeal of genetic explanations for a growing range of conditions.