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Field Play: The Normalization of an Alternate Cognizance in Seriously Ill Children
Author(s) -
Saxton Kelvin,
Govertsen Elke
Publication year - 2000
Publication title -
anthropology of consciousness
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.117
H-Index - 14
eISSN - 1556-3537
pISSN - 1053-4202
DOI - 10.1525/ac.2000.11.1-2.14
Subject(s) - pace , mainstream , normalization (sociology) , perspective (graphical) , interpersonal communication , psychology , recall , set (abstract data type) , physical illness , face (sociological concept) , interpersonal relationship , social psychology , developmental psychology , sociology , psychiatry , mental health , political science , cognitive psychology , social science , geography , geodesy , artificial intelligence , computer science , law , programming language
Children who grow up with a life‐threatening illness live and face death in a way that is foreign to those of us who have reached adulthood in relative health. The experiences that form their identities create a range of knowledge, and processes for acquiring that knowledge, quite apart from the mainstream. In the pace of its acquisition, and the depth of its content, this knowledge is hard for the rest of us to comprehend. Indeed, the primary symptom of this alternate cognizance is that it sets these children apart from their families, peers, and greater communities. The child as a whole is marginalized in interpersonal relations by essentializing the child as the illness. The experience of the illness itself further isolates the child. Through firsthand observation, we find that the Hole in the Wall Gang summer camps provide a nearly unique environment for the normalization of this alternate cognizance. At camp, all those things that set them apart from the rest of the world mark them as normal members of a society. Other children share their physical qualities, have similar experiences and immediately understand their perspective on life. Small adjustments to social and physical environments have a lasting effect. A warm pool to swim in, a caring touch, an open smile—the children take the memory of these with them when they leave. They begin to understand that they are a desired part of a large and varied community. A new definition of normal is created and they are included.