Open AccessS1171 EXPLORE Part B: A Prospective, International, Long-Term Natural History Study of Patients With Acute Hepatic Porphyria With Recurrent Symptoms
Author(s) -
David Cassiman,
Raili M. Kauppinen,
Susana Monroy,
MingJen Lee,
Herbert L. Bonkovsky,
Facg,
Manish Thapar,
Encarna GuillénNavarro,
Zhaowei Hua,
Marianne T. Sweetser,
А В Иванова
Publication year - 2021
Publication title -
the american journal of gastroenterology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.907
H-Index - 252
eISSN - 1572-0241
pISSN - 0002-9270
DOI - 10.14309/01.ajg.0000778216.45955.7f
Subject(s) - medicine , visual analogue scale , quality of life (healthcare) , prospective cohort study , acute intermittent porphyria , porphyria , natural history , disease , natural history study , pediatrics , physical therapy , nursing