Open AccessChanging the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field
Author(s) -
Sara Chandros Hull
Publication year - 2019
Publication title -
journal of health care for the poor and underserved
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.511
H-Index - 59
eISSN - 1548-6869
pISSN - 1049-2089
DOI - 10.1353/hpu.2019.0111
Subject(s) - conversation , indigenous , health equity , sociology , trustworthiness , environmental ethics , public relations , health care , research ethics , political science , engineering ethics , psychology , ecology , biology , engineering , social psychology , philosophy , communication , law
"Changing the conversation" around genomic research with U.S. tribal communities may lead to new pathways to address persistent health disparities. Restoring trustworthiness between researchers and communities entails a willingness to listen to Indigenous voices, being flexible, and refining existing policies and frameworks to adapt to communities' needs.