Open AccessAssociation between patient-reported outcomes and objective disease indices in people with NF2
Author(s) -
Aishwarya Shukla,
Fang Chi Hsu,
Bronwyn Slobogean,
Shan Langmead,
Yao Lu,
Jaishri O. Blakeley,
Roy Strowd
Publication year - 2019
Publication title -
neurology. clinical practice
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.674
H-Index - 29
eISSN - 2163-0933
pISSN - 2163-0402
DOI - 10.1212/cpj.0000000000000648
Subject(s) - medicine , quality of life (healthcare) , neurofibromatosis type 2 , physical therapy , surgery , schwannoma , nursing
The association between patient-reported outcomes and currently used clinical trial endpoints, including total vestibular schwannoma (VS) volume and word recognition score (WRS) in neurofibromatosis type 2 (NF2), is not known.