Open AccessDuality of Purpose: Participant and Parent Understanding of the Purpose of Genomic Tumor Profiling Research Among Children and Young Adults With Solid Tumors
Author(s) -
Jonathan M. Marron,
Angel M. Cronin,
Steven G. DuBois,
Julia L. Glade Bender,
AeRang Kim,
Brian D. Crompton,
Stephanie C. Meyer,
Katherine A. Janeway,
Jennifer W. Mack
Publication year - 2019
Publication title -
jco precision oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.405
H-Index - 22
ISSN - 2473-4284
DOI - 10.1200/po.18.00176
Subject(s) - profiling (computer programming) , medicine , primary care , family medicine , computer science , operating system
Increasing use of genomic tumor profiling may blur the line between research and clinical care. We aimed to describe research participants' perspectives on the purpose of genomic tumor profiling research in pediatric oncology.