An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency
Author(s) -
TraciL Schaeffer,
JeanieB Tryggestad,
Ashwini Mallappa,
AdamE Hanna,
Sowmya Krishnan,
StevenD Chernausek,
LauraJ Chalmers,
WilliamG Reiner,
BradP Kropp,
A. M. Y. B. Wisniewski
Publication year - 2010
Publication title -
international journal of pediatric endocrinology/international journal of pediatric endocrinology
Language(s) - English
Resource type - Journals
eISSN - 1687-9856
pISSN - 1687-9848
DOI - 10.1186/1687-9856-2010-692439
Subject(s) - medicine , congenital adrenal hyperplasia , 21 hydroxylase , multidisciplinary approach , pediatrics , multidisciplinary team , family medicine , intensive care medicine , endocrinology , nursing , social science , sociology
In 2002 a consensus statement pertaining to the management of classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency was jointly produced by the Lawson Wilkins Pediatric Endocrine Society and the European Society of Pediatric Endocrinology. One of the recommendations of this consensus was that centers should maintain multidisciplinary teams for providing care and support to these patients and their families. However, the specifics for how this should be accomplished were not addressed in the original consensus statement. Here we interpret and translate the 2002 consensus statement recommendations into medical, surgical and mental health protocols. Additionally, we provide preliminary evidence that such protocols result in improved care and support for patients and families.
Open Access