z-logo
open-access-imgOpen Access
Quality of Life of Latino and Non-Latino Youth With Sickle Cell Disease as Reported by Parents and Youth
Author(s) -
Jennel C. Osborne,
Nancy Green,
Arlene Smaldone
Publication year - 2020
Publication title -
hispanic health care international
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.274
H-Index - 14
eISSN - 1938-8993
pISSN - 1540-4153
DOI - 10.1177/1540415320908525
Subject(s) - quality of life (healthcare) , minimal clinically important difference , medicine , ethnic group , disease , descriptive statistics , clinical psychology , psychology , gerontology , randomized controlled trial , nursing , mathematics , sociology , anthropology , statistics
Approximately 10% to 15% of people affected by sickle cell disease (SCD) in the United States are Latino, many of whom are primary Spanish speakers. A key tool for self-reported outcome measures, the Pediatric QOL Inventory (PedsQL) SCD module, was not available in Spanish. Here, we assess the linguistic validity of a Spanish translation and compare perception of disease-specific and generic quality of life (QOL) in a sample of Latino and non-Latino children with SCD and their parents.

The content you want is available to Zendy users.

Already have an account? Click here to sign in.
Having issues? You can contact us here