Open AccessQuality of Life of Latino and Non-Latino Youth With Sickle Cell Disease as Reported by Parents and Youth
Author(s) -
Jennel C. Osborne,
Nancy Green,
Arlene Smaldone
Publication year - 2020
Publication title -
hispanic health care international
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.274
H-Index - 14
eISSN - 1938-8993
pISSN - 1540-4153
DOI - 10.1177/1540415320908525
Subject(s) - quality of life (healthcare) , minimal clinically important difference , medicine , ethnic group , disease , descriptive statistics , clinical psychology , psychology , gerontology , randomized controlled trial , nursing , mathematics , sociology , anthropology , statistics
Approximately 10% to 15% of people affected by sickle cell disease (SCD) in the United States are Latino, many of whom are primary Spanish speakers. A key tool for self-reported outcome measures, the Pediatric QOL Inventory (PedsQL) SCD module, was not available in Spanish. Here, we assess the linguistic validity of a Spanish translation and compare perception of disease-specific and generic quality of life (QOL) in a sample of Latino and non-Latino children with SCD and their parents.