Open AccessStakeholder informed development of the Emotion Awareness and Skills Enhancement team–based program (EASE-Teams)
Author(s) -
Kelly B. Beck,
Jessie B. Northrup,
Kaitlyn E. Breitenfeldt,
Shan Porton,
Taylor N. Day,
Kristen T. MacKenzie,
Caitlin M. Conner,
Carla A. Mazefsky
Publication year - 2021
Publication title -
autism
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.899
H-Index - 96
eISSN - 1461-7005
pISSN - 1362-3613
DOI - 10.1177/13623613211061936
Subject(s) - intellectual disability , psychology , autism , mental health , cognition , caregiver stress , clinical psychology , usability , developmental psychology , psychiatry , medicine , dementia , disease , pathology , human–computer interaction , computer science
Emotion dysregulation (ED) impacts mental health symptoms and well-being in autistic individuals. In prior work, we developed the Emotion Awareness and Skills Enhancement (EASE) to improve emotion dysregulation with autistic adolescents (aged 12-17). The study team partnered with autistic individuals, their caregivers, and expert clinicians to adapt EASE for autistic adolescents and adults with co-occurring intellectual disability and autistic elementary-aged children, groups that often benefit from caregiver support in treatment. In three phases, we (1) gathered caregiver and expert feedback to adapt the original EASE program for autistic adults with intellectual disability, (2) revised the treatment after using it with six autistic adults with intellectual disability, and (3) tested the newly developed caregiver-client team-based treatment, called EASE-Teams, in a small group of 10 autistic individuals with and without intellectual disability (aged 7-25). Families found EASE-Teams to be acceptable and helpful. We found improvements in emotion dysregulation and mental health symptoms for autistic participants. Caregivers reported less stress from their child's dysregulation after participating. These results show that EASE-Teams can be appropriate for different developmental and cognitive needs. Future studies will need to test the benefits of the treatment in community clinics.