Open AccessFactors Associated With Parental Activation in Pediatric Hematopoietic Stem Cell Transplant
Author(s) -
Brian W. Pennarola,
Angie Mae Rodday,
Deborah K. Mayer,
Sara J Ratichek,
Stella M. Davies,
Karen L. Syrjala,
Sunita K. Patel,
Kristin Bingen,
Mary Jo Kupst,
Lisa A. Schwartz,
Eva C. Guinan,
Judith H. Hibbard,
Susan K. Parsons
Publication year - 2011
Publication title -
medical care research and review
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.433
H-Index - 85
eISSN - 1552-6801
pISSN - 1077-5587
DOI - 10.1177/1077558711431460
Subject(s) - multivariate analysis , hematopoietic stem cell transplantation , cohort , medicine , disease , hematopoietic stem cell , multivariate statistics , stem cell , psychology , haematopoiesis , genetics , statistics , mathematics , biology
Patient activation, the extension of self-efficacy into self-management, is an essential component of effective chronic care. In pediatric populations, caregiver activation is also needed for proper disease management. This study investigates the relationships between parental activation and other characteristics of parent-child dyads (N = 198) presenting for pediatric hematopoietic stem cell transplant. Parental activation concerning their child's health was assessed using the Parent Patient Activation Measure (Parent-PAM), a modified version of the well-validated Patient Activation Measure (PAM). Using hierarchical linear regression and following the Belsky process model for determining parenting behaviors, a multivariate model was created for parental activation on behalf of their child that showed that the parent's age, rating of their own general health, self-activation, and duration of the child's illness were significantly related to Parent-PAM score. Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course.