Open AccessThe moral experiences of children with osteogenesis imperfecta
Author(s) -
Yi Wen Wang,
Franco A. Carnevale,
María Ezcurra,
Khadidja Chougui,
Claudette Bilodeau,
Sophia Siedlikowski,
Argerie Tsimicalis
Publication year - 2022
Publication title -
nursing ethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.85
H-Index - 59
eISSN - 1477-0989
pISSN - 0969-7330
DOI - 10.1177/09697330221105635
Subject(s) - osteogenesis imperfecta , psychology , developmental psychology , medicine , pathology
Serious ethical problems have been anecdotally identified in the care of children with osteogenesis imperfecta (OI), which may negatively impact their moral experiences , defined as their sense of fulfillment towards personal values and beliefs.