Open AccessMeasuring Health-Related Quality of Life in Pediatric Neurology
Author(s) -
Monica E. Lemmon,
Hanna Huffstetler,
Bryce B. Reeve
Publication year - 2020
Publication title -
journal of child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.661
H-Index - 105
eISSN - 1702-6075
pISSN - 0883-0738
DOI - 10.1177/0883073820923809
Subject(s) - pediatric neurology , neurology , quality of life (healthcare) , medicine , quality (philosophy) , health related quality of life , medline , psychology , psychiatry , pediatrics , nursing , pathology , disease , philosophy , epistemology , political science , law
Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.