Open AccessCommunityRx: Optimizing a Community Resource Referral Intervention for Minority Dementia Caregivers
Author(s) -
Emily Abramsohn,
Kelsey Paradise,
Crystal M Glover,
Maureen R. Benjamins,
Leilani Douglas,
Jessica Jerome,
Maylene L Kim,
Tia Kostas,
David Mata,
Fatima Padron,
Raj C. Shah,
Stacy Tessler Lindau
Publication year - 2021
Publication title -
journal of applied gerontology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.857
H-Index - 50
eISSN - 1552-4523
pISSN - 0733-4648
DOI - 10.1177/07334648211005594
Subject(s) - dementia , referral , resource (disambiguation) , intervention (counseling) , nursing , medicine , service delivery framework , focus group , service (business) , gerontology , disease , psychology , business , computer network , pathology , marketing , computer science
Community resource referral systems have been implemented into care settings that serve persons with dementia but with little input from caregivers. Focus groups were conducted with African American, Hispanic, and Asian caregivers to describe their preferences for community resource referral information. Caregivers discussed the significance of a community resource list for dementia caregiving and self-care and articulated strategies for effective information delivery during a medical visit. Most caregivers acknowledged that resource needs change with progression of dementia, but no patterns emerged with regard to preference for information delivered incrementally based on disease stage or all at once. Hispanic and Asian caregivers felt that resource information should specify service providers' language and cultural capabilities. All caregivers agreed that delivery by a member of the care team with knowledge of dementia-specific resources would be most effective. Optimal delivery of community resource referrals is caregiver-centered and customizable to individual and subgroup preferences.