Open AccessRecruiting Persons with Dementia and Caregivers in a Clinical Trial: Dyads Perceptions
Author(s) -
Miranda McPhillips,
Darina Petrovsky,
Glenna Brewster,
Junxin Li,
Nalaka S. Gooneratne,
Nancy Hodgson,
Justine Sefcik
Publication year - 2021
Publication title -
western journal of nursing research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.552
H-Index - 62
eISSN - 1552-8456
pISSN - 0193-9459
DOI - 10.1177/01939459211008563
Subject(s) - dementia , theory of planned behavior , psychology , perception , incentive , control (management) , clinical psychology , medicine , disease , management , pathology , neuroscience , economics , microeconomics
Recruitment for dementia research is challenging and costly. Using Ajzen's Theory of Planned Behavior we explored attitudes, perceived norms, and perceived behavioral control of persons living with dementia (PLWD) and their caregivers who participated in one clinical trial to better understand factors that influence dyads' decisions to enroll. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers and utilized directed content analysis. Categories connected with positive attitudes about study enrollment were personal desires of wanting to learn and in-person meetings with knowledgeable staff. Additionally, participants said the money always helps in terms of the financial incentive. Participants reported enrolling to support another person (perceived norm). Study requirements were thought to be easy (perceived behavioral control). Participants highlighted the importance of flexible scheduling and study tasks being completed at their home. Findings can inform future recruitment efforts and should be investigated as effective recruitment methods in other clinical trials.