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Longitudinal assessment of outcome, health status, and changes in lifestyle associated with long‐term home parenteral and enteral nutrition
Author(s) -
Malone M
Publication year - 2002
Publication title -
journal of parenteral and enteral nutrition
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.935
H-Index - 98
eISSN - 1941-2444
pISSN - 0148-6071
DOI - 10.1177/0148607102026003164
Subject(s) - medicine , parenteral nutrition , enteral administration , regimen , disease , pediatrics , physical therapy
BACKGROUND: The purpose of this study was to assess the health status, frequency of therapy‐related symptoms, and impact of home parenteral and enteral nutrition (HPEN) on lifestyle in patients who were stable and had nonmalignant diagnoses. Assessments were made at 2 time points, 3 years apart. METHODS: Institutional review board approval was obtained. Adult HPEN patients self‐completed a general health status questionnaire (SF‐36) and a lifestyle‐symptom questionnaire in 1993 and 1996. Demographic data relating to underlying disease state and infusion regimen were also collected. RESULTS: Seventeen patients (7 men, 10 women; 13 receiving home parenteral nutrition [HPN] and 4 receiving home enteral nutrition [HEN]) participated in the study. The mean (SEM) duration of HPEN therapy at the start of the study was 7.1 (1.6) years. Although health status as assessed by SF‐36 scores was lower in all categories when compared with age‐ and gender‐matched control data from the general US population (p <.05), there was no significant difference in SF‐36 scores between the 2 time periods (p >.05). Sleep, travel, and social activities were the most affected aspects of the patient's lifestyle. CONCLUSIONS: These data suggest that patients with nonmalignant underlying disease receiving HPEN maintain a stable health status over a prolonged period.