
Parental knowledge of chronic inflammatory bowel diseases in a child
Author(s) -
Leona Cilar,
Špela Polak,
Barbara Kegl
Publication year - 2021
Publication title -
sestrinski glasnik
Language(s) - English
Resource type - Journals
eISSN - 1848-705X
pISSN - 1331-7563
DOI - 10.11608/sgnj.26.1.5
Subject(s) - inflammatory bowel disease , medicine , quality of life (healthcare) , disease , ulcerative colitis , descriptive statistics , chronic disease , pediatric gastroenterology , pediatrics , family medicine , environmental health , nursing , statistics , mathematics
Chronic inflammatory bowel disease is a chronic lifelong diseasewith various triggers, intermediate longer and shorter remissions. Parentsneed to know what kind of nutrition the child with chronic inflammatory boweldisease needs because they must be able to make the right decisions regardingthe child‘s diet. The right choice of diet gives a child enough energy in their dailyand enables the quality life. They must enjoy a healthy balanced diet so thatthey receive all the nutrients the body needs. In our work, we presented chronicinflammatory bowel disease in children and parents’ assessment of the child’squality of life.Methods: We chose a quantitative methodology to establish the impact of dieton the quality of life of the child with chronic inflammatory bowel disease. Todescribe and define the problem, we used a descriptive method. A structuredmeasurement instrument was based on a review of the relevant foreign anddomestic literature. Statistical data analysis was performed using descriptiveand inferential statistics. Data were collected by a non-random and occasionalsampling survey.Results: We found that most children whose parents participated in this researchhave Crohn’s disease (n = 20; 50%) and ulcerative colitis (n = 16; 40%).The type of food that is harmful to the child is fatty food (n = 33; 83%), followedby spicy food (n = 32; 80%) and acidic food (n = 10; 25%). According to the parents’assessment, children with chronic inflammatory bowel disease have good(n = 22; 55%) health. We found that physicians provide parents with the mostnecessary nutrition information. Through evaluation of the parents, we foundthat there is no statistically significant correlation between the general assessmentof a child’s health and the type of chronic inflammatory bowel disease(X² (2) = 5.925, p = 0.052). Also, there is no statistically significant correlationbetween the eating pattern and parents ’assessment of their child’s quality oflife (U = 38.00, p. = 1.00).Discussion: The health care providers have an important role to play in givingappropriate information to parents to ensure the quality of life of the child. Sheteaches parents and children about living with chronic inflammatory bowel diseaseand emphasizes the importance of nutrition, which greatly contributes toa better quality of life.