Open AccessSystemic scleroderma patient education: a booklet report
Author(s) -
Caio Carvalhais Chaves,
Ana Leticia Fontes De Oliveira Marcelino,
Laura Cristine Carmo Da Silva,
Juliana Alves de Andrade,
Flávia Patrícia Sena Teixeira Santos,
Gilda Aparecida Ferreira,
Débora Cerqueira Calderaro
Publication year - 2021
Publication title -
acta fisiátrica
Language(s) - English
Resource type - Journals
eISSN - 2317-0190
pISSN - 0104-7795
DOI - 10.11606/issn.2317-0190.v28i2a181801
Subject(s) - scleroderma (fungus) , medicine , patient education , systemic therapy , occupational therapy , distribution (mathematics) , systemic scleroderma , medical education , physical therapy , family medicine , dermatology , pathology , mathematical analysis , mathematics , cancer , breast cancer , inoculation , dermatomyositis
Objective: This study aims to describe the development and online distribution of a patient education booklet about systemic scleroderma focused on occupational therapy orientations. Methods: The research-action methodology was applied and divided into the following five steps: analysis of patients' requests, preparation of the content, choice of illustrations and graphic design, developers' approval of the education booklet, and online distribution. Results: The education booklet entitled "Occupational Therapy Guidelines for People with Systemic Sclerosis" was developed, and its online distribution reached nearly 5000 people. Conclusion: Educational materials serve as adjuncts to the treatment of chronic diseases, as systemic scleroderma. The online distribution of these materials expands its reach among these patients.